Welcome to Cooley's Anemia Foundation Welcome to the home of the Cooley's Anemia Foundation. This information is for patients and their families, medical personnel, donors, Foundation volunteers, and anyone interested in learning about Cooley's Anemia and other forms of the genetic blood disorder, thalassemia.
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Written by Roger Burks
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Tuesday, 10 April 2012 13:44 |
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April 6, 2012 - My name is Aaron Cheng, and I’ve just completed my first semester of college at Harvard University. I don’t remember when I was diagnosed with beta thalassemia major, which is also known as Cooley’s Anemia, but my parents tell me it was when I was around one year old. We were visiting Taiwan, and my mother and father noticed specks of blood in my diaper. Soon afterward, doctors told my parents that I had Cooley’s anemia. |
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Last Updated ( Tuesday, 01 May 2012 18:42 )
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Written by Administrator
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Tuesday, 28 February 2012 15:39 |
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February 28, 2012 - Care Walks can be set up for just you and your family and friends or they can be larger "organized" Walks for many more people. Following is a list of some organized Care Walks, in case you would like to join up with others who may be in your area. |
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Last Updated ( Friday, 04 May 2012 20:40 )
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Written by Craig Butler
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Friday, 16 March 2012 18:00 |
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March 16, 2012 - CAF has announced its 2012 Patient~Family Conference, to be held June 29 to July 1 in Cambridge, MA. |
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Last Updated ( Monday, 19 March 2012 19:17 )
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Written by Craig Butler
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Monday, 16 April 2012 15:39 |
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April 13, 2012 - The annual Good Friday Dinner Dance by the Queens chapter of CAF is one wonderful party. Below we share some pictures from this year's festivities. |
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Last Updated ( Monday, 16 April 2012 20:49 )
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Written by Craig Butler
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Monday, 19 March 2012 20:07 |
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March 19, 2012 - It's been a mild winter in the East, but the official start of spring for many will be on April 24 - when the Staten Island chapter of CAF presents its always-anticipated annual Charity Golf Outing! |
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Last Updated ( Monday, 19 March 2012 20:17 )
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Written by Craig Butler
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Monday, 06 February 2012 20:33 |
February 6, 2012 - Get out your calendars – open up your eCalendars – and mark Sunday, May 6 for CAF’s Care Walk 2012!
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Last Updated ( Monday, 09 April 2012 15:16 )
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Written by Craig Butler
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Tuesday, 28 February 2012 15:09 |
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February 24, 2012 - Save the Date! The Cooley's Anemia Foundation will hold the 2012 Patient-Family Conference from June 29 - July 1at the Royal Sonesta Hotel in Cambridge, MA. |
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Last Updated ( Tuesday, 28 February 2012 15:10 )
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Written by Craig Butler
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Friday, 16 March 2012 17:36 |
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March 15, 2012 - Shire plc, the global specialty biopharmaceutical company, announces that it has signed an agreement to acquire FerroKin BioSciences, Inc., for an upfront payment of $100 million, payable in cash at closing, plus potential post-closing milestone payments of up to $225 million, depending upon the achievement of certain clinical development, regulatory and net sales targets. |
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Last Updated ( Friday, 16 March 2012 17:36 )
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Written by Roger Burks
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Wednesday, 22 February 2012 20:59 |
February, 2012 - Rahul Kapoor is the sole member of his immediate family with thalassemia – but his entire family shoulders the struggle. They’ve rallied around him and supported one another since he was diagnosed with the blood disorder when he was four years old.
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Last Updated ( Wednesday, 22 February 2012 21:24 )
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Written by Craig Butler
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Friday, 18 November 2011 17:00 |
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February 18, 2012 - The January, 2012 issue of Lifeline, the Cooley's Anemia Foundation's newsletter, can be downloaded as a pdf by clicking here. |
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Last Updated ( Wednesday, 22 February 2012 14:33 )
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Written by Craig Butler
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Tuesday, 07 February 2012 16:04 |
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February 7, 2012 - The National Institutes of Health (NIH) has created a new website, NIH Clinical Research Trials and You, to help people learn more about clinical trials, why they matter, and how to participate. |
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Last Updated ( Tuesday, 07 February 2012 16:16 )
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